Εξειδίκευση τύπου :	Άρθρο σε επιστημονικό περιοδικό
Τίτλος:	Health networking on cancer in the European Union: a 'green paper' by the EU Joint Action on Networks of Expertise (JANE)
Δημιουργός/Συγγραφέας:	Casali, P G Antoine-Poirel, H Berrocoso, S Blay, J-Y Dubois, T Ferrari, A Fullaondo, A Hovig, E Jagodzińska-Mucha, P Ługowska, I Kaasa, S Nicoară, D [EL] Πλέτσα, Βασιλική[EN] Pletsa, Vassiliki Provenzano, S Santoro, M Šekerija, M Van Hoof, W Vyas, M Trama, A
Χορηγός :	European Union
Ημερομηνία:	2025-02
Γλώσσα:	Αγγλικά
ISSN:	20597029
DOI:	10.1016/j.esmoop.2024.104126
Άλλο:	39874899
Περίληψη:	Health networking is in principle a formidable instrument to address many challenges posed by cancer, one of the two most common and most lethal non-communicable chronic diseases. The European Union (EU)'s Beating Cancer Plan foresaw the addition of new health networks to the four already existing European Reference Networks on rare cancers: the Network of Comprehensive Cancer Centres and several networks of expertise (NoEs), which will be shortly deployed on items as complex and poor-prognosis cancers, palliative care, survivorship, personalised primary and secondary prevention, omic technologies, hi-tech medical resources, and cancers in adolescents and young adults. The community of experts of the EU Joint Action, due to build such NoEs, has drafted this 'green paper', incorporating 13 open questions, in an effort to foster discussion on some open questions about health networking on cancer in the EU. These affect highly diverse issues such as the following: how gaps in research into the instrument of health networking may be filled; which items lend themselves more to health networking in the EU; what degree of cooperation and harmonisation should be required of EU member states to best exploit health networking and give rise to European networks of national/regional networks; how the idea of subsidiarity may be best interpreted to support health networking in the context of EU treaties, which basically do not include health; how health networks should be funded and with what degree of cooperation between the EU and national levels; whether EU health networks should be shaped as legal entities or could give rise to secondary legal entities, also with a view to fundraising; how health networks should be best shaped to advance cancer research and how the EU regulatory system should be updated to exploit such impulse to health networks, in view of the EU General Data Protection Regulation and the new EU Health Data Space; how artificial intelligence can be exploited today within health networks and to what extent it will be able to overcome challenges such as the current lack of interoperability of electronic health records and the language barrier across the EU; and how health networks should involve patients and their groups, with regard to their formal role within EU health networks as well as their ability to have a say in items such as production of clinical practice guidelines, the design of investigator-driven clinical trials, EU regulatory decisions on medicines and devices, health service data governance, and identification of unmet needs.
Τίτλος πηγής δημοσίευσης:	ESMO open
Τόμος/Κεφάλαιο:	10
Τεύχος:	2
Θεματική Κατηγορία:	[EL] Δημόσια υγεία. Υγιεινή. Προληπτική ιατρική[EN] Public health. Hygiene. Preventive medicine [EL] Νεοπλάσματα. Όγκοι. Ογκολογία (περ. Καρκίνος, κακινογόνες ουσίες)[EN] Neoplasms. Tumors. Oncology (Incl.cancer, carcinogens)
Λέξεις-Κλειδιά:	European Union cancer expertise health networking health policy joint action humans community networks neoplasms
EU Grant:	EU4Health Joint Action on Networks of Expertise’ - JANE
EU Grant identifier:	no. 101075328
Κάτοχος πνευματικών δικαιωμάτων:	© 2025 The Authors. Published by Elsevier Ltd on behalf of European Society for Medical Oncology.
Όροι και προϋποθέσεις δικαιωμάτων:	This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
Ηλεκτρονική διεύθυνση στον εκδότη (link):	https://doi.org/10.1016/j.esmoop.2024.104126
Εμφανίζεται στις συλλογές:	Ινστιτούτο Χημικής Βιολογίας - Επιστημονικό έργο